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Post Info TOPIC: Ladies some ESH please


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Ladies some ESH please


 


Fair warning...not for the weak.  Way personal post...but need the ESH!


 


I am sure most women can identify to this.  I have had ovarian cysts for nearly 15 years now.  One here, another here, two here.  I have seen the dr. many times in the past for it.  There just isn't a whole lot a girl can do but, wait it out.


I went about a year ago with two of these fun things at the same time.  I don't remember the dynamics of the situation, I just remember the dr saying he needed to do a hysterectomy the following day and it could not be put off. 


I agreed and then, flipped out, chickened out, whatever you want to call it. (Couldn't leave children with an active a at the time)  I made a deal.....deal with a dr...lol....that the next time I got one....I would be right in for that.  I have had several since then.  They make my cycle much worse, pain wise and bleeding wise when I have them or am recovering from one.  When it would get too bad the dr would check the blood count to see about the danger zone for excessive blood loss.


Yes, I am wiped out and anemic at the moment.  My hormones have been on a roller coaster for nearly two months now with the latest cyst.  My ABF who is in recovery, grounds me 99% of the time.  I get that just by watching, listening, and speaking to him.  He is very inspiring to work my program with everything in me. He has hit new levels I just haven't seen out of him through this.  I do my best not to complain about any of it (pain or being wiped out).  I know he hears it in my voice and I know he loves me and is just concerned.


He has been pushing me (not typically him) to see the dr.  I know what the dr will say.  I have no way to pay for the surgery.  No one to watch my children while I am in the hospital or recovering.  I cannot miss anymore classes.  Yes, my kids need a happy healthy mother, but I am having trouble seeing where this would be feasible for discomfort I have put up with many years and is just a part of life. 


Is it my hormones causing me to think irrationally?  My boyfriend isn't the only one upset with me for my decision.  I know they are all just concerned.....but they are male.  I don't mean that in a "they are them and I am it" kinda thing.  Men's bodies just aren't built this way.  I am a perfectly happy water retaining sea cal, who just happens to like eating chocolate and playing connect the dots on ALL of my cheeks.


There is nothing that can be done about it today.  I can say no.  I am not responsible for the way others feel.  Am I just being bull-headed. The ABF has just been hitting meeting after meeting though it and I as well.  One of us is going to have to be talked off the edge before to long.


I think at this point some ESH from someone not so closely concerned would be a little more grounding. 


Ziggy


 



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ZiggyDoodles


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My sister went through this...


She had the resources to see NUMEROUS doctors to get not only a second opinion, but up to a fifth.


I remember that she said that one doctor said that one important consideration was her age...and at what age she could expect to go through menopause.  At the time she was 45, and woman in my family don't start menopause until at least age  50.  So, she had five more years at LEAST of this sort of pain, heavy bleeding, etc. and she thought she could not do it and keep up with her lifestyle (mom, scientist, girl scout leader, artist, etc.).  Your hormones slow down considerably as you approach menopause, so for many women, if they can stick it out that long, the reduced hormones eventually makes the problem go away.


Three of the doctors recommended a hysterectomy, but she  saw another doctor that was pioneering a new procedure that did involved removing the cysts, but leaving her female organs intact.  I don't remember exactly what it was, but something involving freezing or burning them off I think?  It was an experimental procedure and she had to go to a research hospital to have it done.


She said she healed fine and was home that same day.  The problem is gone, she still has all of her femals organs, and she feels GREAT.


So, get a second opinion, or third, whatever and consider your age and how close you are to menopause and a relief of these stymptoms.


Do a lot of research, having a hysterectomy is a VERY serious procedure and I have read that far too many male doctors recommend its removal at the drop of a  hate.  The traditional thinking is that once you are done having kids that the uterus and other female organs are obsolete.  Nothing could be further from the truth.  I have read of womans bladder collapsing into the void left from the removed uterus, or their intestines getting blocked by tangling, etc. and then needing FURTHER surgery.


Probably your best bet for a good second opinion would be a good FEMALE gynocologist.


Just my ESH.


Isabela



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~*Service Worker*~

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(((((((((((Ziggy)))))))))))))),


I have no ESH about this.


I do know that you need to take care of you!


I hope a solution finds you quick, and prayers are on the way.


Yours in recovery,


Mandy



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"Today's problems can not be solved if we still think the way we did when we created them" -Albert Einstein


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(((Ziggy)))


I had a hysterectomy when I was 32.  The pain was simply unbearable each month.  I had to look at all my options too.


1. I had 4 children depending on me


2. at the time I was working for $3.25/hr and their A father was not working at all


3. I didn't want anymore children


4. I had reached the point that I was not willing and/or able to bear the pain anymore


I think you could make a list of the pro's and con's.  The first being willing to get a second opinion of course.  Then, do you truly not have anyone to help with your kids?....no family nearby, no Al-anon/AA family or close relatives near?


This is such an important step, and a list of pro's and con's can help.  Include the possibilities of not having something done now and what the risk may involve in the future.  Medically speaking a 2nd opinion from another Dr can help there.


My prayers are with you as you are the only one who can truly make this decision.


Love and Hugs,


Irish54



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irish54


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 I have PCOS. I was told that eventually this might happen to me.


 I believe that if I do the next right thing, god will see to it that everything else is take care of.



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(((Ziggy)))


2 months ago I had ablation done and springs put into my tubes to block eggs and sperm from getting to each other.  It was an out-patient procedure and I was back on my feet the next day.  Ablation can be done in many different ways now.  It emliminates the heavy bleeding and my doc said I should do this first before considering a hysterectomy.  Just because you have always endured the pain and misery of your cycle does not make it OK.  You are anemic and all over the place emotionally and physically due to the hormones.  I say get another opinion and see if an ablation will help you.  You can make payments to the hospital so you do not have to be hit with a huge bill either way.  Your health is more important than a bill.  It is priceless...take care of you first.


 


Julia 



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~*Service Worker*~

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Well you can go to the county hospital ask for an ability to pay deterination and have it done there for a reduced fee.  I think its important to think of options.   Right now I need dental work, in a  few weeks I will have insurance that will help me pay for it. I am putting it off for a few weeks


But you have been putting this surgery off for the indefinite future.  You have resources.  Your health is very very important. Believe me I let my health go kaput. I can not say it was all over the A. I think it was all about my inability to take care of myself.  I do know that bleeding cause anemia which causes fatigue which causes...


Admittedly you have options, it sounds like your doctor thinks the hysterectomy is essential.  Why not explore options of the way you can do this that is optimal for you.  Your health is precious. You are precious. I realise people rely on you but without your health you are not funcitioning at optimal level.


I also know all about self abnegation. I have put off a great deal in my life. I stand on my head so easily for others.  No one is asking you to collapse. Nevertheless it does sound like you are at a turning point. The key is for you to make the decisions rather than have the decision  made for you by your health declining rapidly.


Maresie.



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maresie


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Thank you guys.  You are all right.  My health is too precious.  How can I tell people I sponsor, or just someone in the program that , we have to take care of us first and get ourselves healthy first, before we can help pick up the pieces for those we love.


My OB/GYN and his wife share the same office.  They are both OB/GYN.  She had to literally scrape me off the floor once when he was out of town.  After her exam and what her husband had wrote in my chart after my last baby, she told me she felt that was something that needed to happened (hyst). At the time he didn't agree.  He change is mind and felt it needed to happen right away for what ever reason.


The cyst did rupture this morning.  Finally!  I am very, very sore.  I finally broke down and took something for the pain.  I am still bleeding heavy but not like the last few days.  I am going to take it easy today and probably go to a meeting tonight.  I still feel very emotional.  A "baby doll" commercial made me start crying!  A doll!  My fuse is short along with that. 


I am interested in looking in to ablation Julia spoke of.  Seem like was something that was disscussed and ruled out at one time.  Something along those lines.


I am going to call and talk to the hospital.  See what I can do payment wise.  I owe them money already.  I will also make an appointment with the OB/GYN and go from there.  My parents live an hour from here, so I will call and talk to them when I know a little more.  They might be able to trade off.


Thank you!


Ziggy



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ZiggyDoodles


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Ziggy,

I'm so glad to see you've made the decision to take care of you.
My daughter has the same problem. She has had every procedure known to man except a hysterectomy), burned off, frozen, laparoscopic surgery etc. The cysts just reoccur..
They won't do a hystrectomy because she is too young, even though she has sworn to them she wants no more children.
There are different types of cysts. Some can appear only once and be removed. I assume yours are like hers and you are dealing with it quite frequently. They also leave adhesions on the ovary.
Hysterectomies now can be done much less invasibly (no huge tummy incision) now days then in the past. The recovery time is much faster.

Good Luck!
Christy

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If we think that miracles are normal, we will expect them.  And expecting a miracle is the surest way to get one.



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Hi (((Ziggy)))


I don't have any experience in this area, I am sorry you are going thru a painful time.


I did find out earlier this year that hospitals have funds set up for situations like this and you may qualify. When I lost my insurance through my husband earlier this year and all the money troubles began, I had copay fees due and was able to apply for a community care or sometimes called hardship funds to help ... it ended up covering all my copays at the time.


A coworker of mine who is not able to work much due to back problems was preapproved for community care for soem expensive tests she needed. But I do not know the particulars.


Maybe one of your local hospitals has something similar if needed.


Jennifer 


 



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Thank you guys for all your great responses.  I appreciate all that you guys have given me.  I hope by tomorrowI will have somemore energy back.  Yeah, I am sore....but just completely out of gas.


Love you all,


Ziggy



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ZiggyDoodles


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I had a total abdominal hysterectomy and a bilateral oopherectomy (uterus, cervix, and both ovaries removed) on July 11, 2006.


I had two fibroids, cysts on my ovaries, cervix and uterus. I also had endometriosis and adenomyosis. I had severe bleeding, extremely painful periods (and between periods), and I suffered from PCOS symptoms (poly-cystic ovarian syndrome).


It took me over a year to make the decision to have this surgery.


I found a website that is WONDERFUL that covers all of the feelings associated with making a decision to have or not to have a hysterectomy: www.hystersisters.com.


You are not alone!



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